European Journal of Biomedical and Pharmaceutical Sciences

ADDRESSING UNMET NEEDS IN HEMOPHILIA QUALITY OF LIFE IN LOW- AND MIDDLE-INCOME COUNTRIES: CHALLENGES AND STRATEGIES FOR IMPROVEMENT

Adela Perolla*

ABSTRACT

Hemophilia, a genetic bleeding disorder characterized by a deficiency in clotting factors, affects millions of people worldwide, with the quality of life (QoL) for affected individuals remaining suboptimal, particularly in low- and middle-income countries (LMICs). This article discusses the unmet needs in hemophilia care and management in LMICs, highlighting challenges and potential strategies for improvement. Key areas of focus include limited access to comprehensive care, prophylactic treatment challenges, personalized treatment barriers, pain management gaps, mental health support, caregiver support, education and awareness, employment and financial support, and integration of telehealth and digital health technologies. By employing a multifaceted approach involving governments, healthcare systems, international organizations, and patient advocacy groups, it is possible to significantly improve the QoL for individuals with hemophilia in these regions.

Keywords: Hemophilia, quality of life, low- and middle-income countries, comprehensive care, prophylactic treatment, personalized treatment, pain management, mental health support, caregiver support, education and awareness, employment and financial support telehea